Remember when everyone had a blog? And then we all just kind of stopped doing it? Yeah, me too.
I've been thinking of starting back up again since I got my diagnosis. I've been writing a lot in my journal and also on Facebook, but I thought it would be nice to have everything in one location. I'll probably copy of few of those entries to have a more complete story instead of just writing everything all over again... but I'll also fill in gaps that those left off.
I can start by saying that I never really thought I'd be facing this disease. Cancer was something that just wasn't on my radar. It should have been, though. My maternal grandmother died in 1965 from breast cancer that spread to her brain. Side note: I never got to meet her as she died before I was born, but I'd like to think that we would have been great buddies who would have got into all kinds of mischief together. I feel a strong connection to her, and I have for years. Okay back to the cancer thing... When I had my very first mammogram 9 years ago, I was told not to be surprised if I got a call to come back for some more imaging. There is nothing to compare a first mammogram to, so they sometimes need multiple images to get a good look at things. Sure enough, I got a call back. This was towards the end of February and I asked them if it could wait a few weeks until I was on Spring Break, and they replied, "Sure, that will be just fine." So I walked in there that morning thinking everything was fine and got ready to have another mammogram. Instead, they informed me that I'm not having a mammogram, I'm having an ultrasound. This sends off all kinds of sirens in my head, and when I ask "Why?" I'm told that just in case there is something there, they want to have a better look at it. "Just in case?" Well, obviously something is there, or you wouldn't be looking at it. But the sweet lady who is doing the ultrasound is just a tech and can't tell me anything. I get a call from my doctor's office the next day and they tell me that I need to come in so they can discuss the results with me. I call Barry, and the two of us meet with the doc; something has shown up and it needs to be biopsied. To make a long story short, it ended up being a cyst. I was seen by an amazing breast doctor, Dr. Richardson, and he did follow-up care for about a year. I was good about getting my mammograms yearly after that.
Well, fast forward several years, and life gets busy, and you get forgetful, and tell yourself that you are fine and you don't have time to go get a mammogram right now, but you'll do it soon. And then you don't... for 2 years. And you wake up one morning and you feel a lump. And you just want to puke. And pretend it's not there and hide. And get a knife and cut the thing right out of yourself. So you cry, a lot. And realize that hiding and disfiguring yourself won't help, so you call your doctor. Thankfully she is amazing and gets you right in. And she does scold you a little bit because she had ordered a mammogram for you 6 months ago (but see that part above about being busy). But she also makes appointments for you to have a mammogram, ultrasound, and biopsy that same day, which is literally unheard of! A week later we got the diagnosis... cancer.
I have a triple negative carcinoma in my right breast, and the cancer has spread to 2 lymph nodes in the breast drain-field. Triple negative means that there are not any hormone receptors in the cancer, so it can't be treated with hormone therapy. I am having old-school chemo to fight this. My oncologist, Dr. Mathews, is wonderful. He is using 3 different chemo drugs - the first 2 are the really nasty drugs, and they are given together once every 2 weeks for 8 weeks. When I go in for treatment, I am given anti-nausea meds and steroids to help me feel good and combat side-effects. Then I get Doxorubicin (also known as Adriamycin), AKA, the Red Devil, injected with a syringe (it's mixed with a saline drip as well). I asked one of the nurses why they use the syringe instead of a drip, and she told me that it was really powerful, nasty stuff, and they need to make sure it is going in properly, so they use a syringe so they can pause and do a small blood draw occasionally to make sure everything is good. Now doesn't that just sound fun? It takes about 20 minutes for it to go in. Then I get Cytoxan (or cyclophosphamide) in an IV drip for a little over an hour. I got a port put in the week before we started chemo, so all of this goes in through it. Because the Red Devil is so harsh, it wreaks havoc on veins, so the port helps to protect them. Also, I have really hard veins to find, so it's great to not have to worry about that every time. I also had to have a test done to make sure my heart was strong enough to handle the meds, as they can be very hard on the heart as well. I just finished my 3rd round of these meds... yay!! Only one more to go, and then I'll be taking Taxol once a week for 12 weeks. I'll get a 3 week break in between to give my body a break, and to make sure that the other two are flushed out well. So, I'll be taking chemo for a total of 5 months. Wow!!!
One of the reasons we are doing so much chemo instead of just surgery (which we could, because the cancer is only located in my breast), is because triple negative cancers have a higher percentage of return. By treating it with chemo first, we cut that rate by 50%! It's hard, and I hate how I feel for days on end afterwards, but if doing it means that I can cut my chances of getting it again by half, then it's worth it!
After chemo is over, I'll have surgery to remove the breast. Barry and I have talked about having a double mastectomy done, but I haven't really discussed it with Dr. Richardson, who will be doing my surgery. It's not medically warranted, but I'm kind feeling like if the left one is gone, that's one less place for cancer to show back up. Plus, to be honest, I'm a little concerned about the aesthetics of it. I'm not sure that insurance would pay for it, either, so it's one of those things we will have to look into more. I've got the time... it will probably be the end of August/first of September before then. Six weeks after surgery, I'll start radiation. If chemo effectively does its job, I'll have 21 rounds of radiation. That could be extended, but hopefully not. Radiation will be given daily, except for Saturday and Sunday, so it will take about a month to get through. My prayer is to be done with everything by Thanksgiving, but I'm not sure how timing of everything will all play out.
2020 has been a tough year so far for all of us. I turned 50 on February 17th, and four days later, I found this lump. It's been a whirlwind of doctor's appointments, test, chemo, and feeling scared, sick, and exhausted ever since. But there have been so many good things happening! I've got my babies all around me (well, except for Kyle, but he is still working and doesn't want to expose me to any possible sickness). We were able to move Josh and Britney here before things got bad, and then Meg was able to come home when her school shut down. She has been taking such good care of me! Barry has been blessed to work at home, and goes to every appointment with me. Having our sweet Payton here is just a joy - she just makes you smile looking at her! I've also been sustained by so many prayers and well wishes from family and friends! I get several cards and gifts each week from so many wonderful people in my life. I just truly can't express how thankful I am to you!
Yes, this is going to be a long fight, but I'm so thankful for the army that is Kim's Krew in my corner! Love y'all!